Taylor "Tay" Caffrey

Our Inspiration for the Event!

In a brief 4 ½ years, Taylor brought so much to our lives and touched so many people. It is amazing the affect Taylor had on this world and continues to touch so many with her story every day. Taylor was fondly known to many as “Tay”, as well as, Tator-Tot, Taylor-Bean, Taylor-Made and Taylor the Investigator.

She came into this world with her twin sister, Brooke, ten weeks early. She weighed only 1 ½ lbs. She had 3 surgeries, one of which was open heart surgery to close a large hole in her heart. She defied all the odds against her and came home at 4 ½ months old, weighing only 4 lbs. She was a miracle baby!

Taylor was small for her age, but was otherwise perfect in every way. Needless to say, we were totally shocked and devastated when Taylor was diagnosed with the terminal illness of Pulmonary Hypertension a few months after she turned 3 years old.

Still, Taylor continued to amaze all who knew her. It is just amazing how hard she fought every day, never gave up, and never complained about anything. The doctors tried every type of oral medication available and as a last resort for treatment, had a central line inserted into her chest to deliver life saving medication 24/7. This was done on August 13, 2009. Taylor passed away on September 19, 2009. In retrospect, we wish she would have been diagnosed sooner and been put on aggressive treatment immediately. Our wish and Taylor’s wish is that other PH patients and their families don’t pay the same price as Taylor. This wish can become a reality if huge strides continue to be made in research and a cure is ultimately found.

For more information on Taylor's journey with PH, please visit: http://www.supportcircle.com/dbmodel_php/supportpage.php
For more information about PH, please visit: http://www.phassociation.org

 

An Awesome Little Person

Taylor was an awesome little person. These were some of Taylor’s favorite things in life:

taylor on the swing

 

  • Her family: Mommy, Daddy, and Brooke, as well as her Grandparents, Aunts, Uncles & Cousins. Family meant everything to her. She always wanted us “all together”. She was wise beyond her years.
  • Running around in just a pair of “big girl” panties and her red “Jessie” hat
  • Tex the THX Surround Sound Robot (she wanted to be him for Halloween)
  • Tinkerbell (her Halloween costume for 2008)
  • Favorite color was blue
  • Favorite holiday was Halloween
  • Dancing (she had the cutest way of shaking her little bottom)
  • Laughing (she had the most infectious belly laugh)
  • Swinging on her swing in the backyard
  • Mornings (she was an early riser and loved to see Daddy off to work and snuggle with Mommy on the couch before Brooke would even make it out of bed.)
  • Rice Krispie Treats
  • Painting & Coloring
  • Playing on her toy lap-top
  • Digging in the dirt in the desert sun or on the beach at the river
  • Riding in Mommy’s Rhino
  • Going on trips in the family motor home (anywhere – she loved adventure)
  • Learning anything (she was teaching herself to read and potty trained herself)
  • Favorite cartoon: Max & Ruby Christmas
  • Favorite book: Flat Stanley
  • Favorite song: “I just want to thank you for letting me be myself” from the movie Shrek 3 (so appropriate).
  • Favorite movie: Night At The Museum
  • Favorite quote: “Somebody’s gonna pay. Pay for what? I don’t know, just pay. NOW, STOP YOUR WHINING AND JUST TAKE IT LIKE A MAN!!!!” (from the movie, Night At the Museum) It so perfectly sums up her strength and attitude.

 

Taylor was such an incredible child and touched so many people during her short time with us. We were truly blessed with an angel on earth. She will continue to be an inspiration to so many people and a source of great joy and happiness as we carry the many fond memories of her in our hearts and minds.